GRDRS2024 | 2024全球罕见病科研论坛暨第二届中国罕见病科研及转化医学大会

About the Conference

2024 Global Rare Diseases Research Symposium & The Second China Rare Diseases Research and Translational Medicine Annual Conference will be held in Shanghai, China from May 23rd to 25th, 2024. The conference is hosted by Hope for Rare Foundation, the International Rare Diseases Research Consortium (IRDiRC), and Fudan University, with National Children's Medical Center / Children's Hospital of Fudan University and Chinese Organization for Rare Disorders as the co-hosts.

The conference will last for 2.5 days with 20 parallel sessions and several satellite meetings. It will bring together over 100 speakers from global universities, hospitals, academic institutions, and pharmaceutical companies. Topics will cover basic research on rare diseases, gene and cell therapies, Investigator Initiated Trials (IIT), clinical studies, drug development, and international research collaborations. The conference will present the latest developments and original findings in rare diseases research, highlighting China’s contributions in the context of a global perspective. 

Conference Venue

Venue: Greenland International Convention Center

Location: Lane 6666, East Huaxia Road, Pudong, Shanghai, 201201

Dates: May 23-25, 2024


Hope for Rare Foundation was founded in Hangzhou, China in 2022 by Mr. Rufang (Kevin) HUANG in partnership with 11 well-known scientists and entrepreneurs. It is the first non-profit foundation in China to focus on rare diseases research and translational medicine. Its vision is to address the medical needs of all patients with rare diseases by leveraging resources and guiding innovative technology to advance the development of both basic and translational clinical research.

International Rare Diseases Research Consortium (IRDiRC) was established in 2011 under the initiative of the European Commission and the U.S. National Institutes of Health. The Consortium gathers 60 member organizations from all continents. By bringing together researchers, funders, and patient advocacy groups, IRDiRC promotes international collaboration in rare diseases research.

Fudan University was established in 1905 as Fudan Public School. It was the first institution of higher education to be founded by a Chinese person. Fudan is famous worldwide for its excellence and devotion in research. The diversity and professionality of the research across current 27 departments related to the science and medical disciplines, means that they not only seek for perfection in basic research but put the passion in translational research to make a different world as well. The two characters, 复fù (“return”) and 旦dàn (“dawn”) were quoted from A Commentary on The Classic of History(《尚书大传·虞夏传》), which means: “Brilliant are the sunshine and moonlight, again the morning radiance returns at dawn.” lt is an encouragement to students and scholars to make unremitting efforts in self-betterment.


National Children's Medical Center / Children's Hospital of Fudan University, founded in 1952, is a Grade A tertiary Pediatric hospital integrating medicine, teaching, research, prevention and management, and was approved as the National Children's Medical Center in 2017. With strong medical strength and distinctive specialty features, it currently has 50 clinical and medical technical departments. It has established close collaboration with 26 internationally renowned medical institutions and has organized large-scale international academic conferences on pediatrics for many times.

The Chinese Organization for Rare Disorders (CORD), founded by Kevin HUANG in 2013, is a non-profit organization specializing in fields of rare diseases. CORD works to promote exchange and cooperation among rare disease patients and organizations, medical specialists, pharmaceutical companies and governmental agencies. It is committed to enhancing public understanding of rare diseases, improving patients’ access to orphan drugs, fostering formulation of rare disease policies, and initiating international exchange and cooperation.


           2024年5月23-25日,2024全球罕见病科研论坛暨第二届中国罕见病科研及转化医学大会将在中国上海举办。大会由瑞鸥公益基金会、国际罕见病研究联盟(International Rare Diseases Research Consortium,简称IRDiRC)、复旦大学主办,国家儿童医学中心复旦大学附属儿科医院、蔻德罕见病中心联合主办。







     瑞鸥公益基金会是国内首家专注于罕见病科学研究与转化医学的创新型公益基金会。基金会由 黄如方先生倡议并联合11位知名科学家和企业家共同发起创立。基金会的愿景是让罕见病患者 人人享有治疗,通过公益的力量,引领科技向善,成为推动罕见病科研和转化医学的创新引擎。