项目简介 Introduction

“金石计划”（Good Faith Moves Mountains）患者社群科研资助项目是一项专门针对患者社群的真实需求，由患者家庭出资，瑞鸥公益基金会联合研究者等多方力量去推动个体化治疗的探索及应用的科研资助项目。

“金石”源自“精诚所至，金石为开”成语，意指人诚心所到，能感动天地，使金石为之开裂。比喻只要专心诚意去做，什么疑难问题都能解决。语出《庄子·渔父》。

Good Faith Moves Mountains is a research program launchedd by Hope For Rare Foundation and aimed to provide personalized treatment to rare disease patients. The research is initiated and financed by patient families and Hope For Rare Foundation leads and builds a joint force withexperts and researchers from related domains. Scan the code to learn more about the details.

项目特点 Pragram Features

• 科研价值极高：重点聚焦罕见且无药可医的疾病的科学研究

    High Value of Scientific Research: Focus on rare diseases without cure at the moment

• 个体化治疗新模式：非注册/非商业化为目的的临床研究探索

     Personalized Treatment: Target on non-registered clinical trials

• 公益科研新模式：瑞鸥基金会发挥资源整合、专业支持、成本控制等聚合作用

     New Mode of Scientific Research: Integrate resource by the foundation, provide scientific support, cost control, etc.

• 募资新模式：患者家庭出资+科研基金配资

     New Financial Model: Financed by patient family and research supporting fund

项目流程 Project Process

公益新模式 New Mode of Scientific Research

研究路径 Research Pathway

如果有罕见病患者家庭正在深受疾病困苦，且家庭经济条件优越，愿意通过科研资助的形式去推动该疾病的科学研究，请点击链接（http://lxi.me/n6l7f）或者扫描下方二维码填写项目资助意愿申请表。

If you are a family affected by a rare disease and are currently facing challenges due to the condition, and if you have the financial means and are willing to support scientific research through funding, please click the following link (http://lxi.me/n6l7f) or scan the QR code below to fill out the Research Sponsorship Intent Form.

项目进展 Pipelines

联系人：黄娟女士

联系方式：0571 8873 3973

Email: juan.huang@hope4rare.org.cn