About the Conference
Hope for Rare Science Conference (HRSC) was launched in 2022 by the Hope for Rare Foundation. The conference aims to establish an academic exchange and collaboration platform for rare diseases research and translational medicine both within China and internationally, with a strong focus on promoting multi-stakeholder collaboration among industry, academia, research, healthcare, patient groups, and government.
Held biennially, the conference brings together leading scientists from around the world to China, showcasing China’s research excellence and fostering in-depth and pragmatic international academic collaboration. It has become one of the most prestigious and large-scale rare disease scientific meetings held in China, striving to grow into one of the most influential rare disease conferences globally.
In today’s complex international landscape, HRSC plays a unique and vital civic role in breaking down barriers to international collaboration, advancing China's contribution to rare diseases research and translation.
About the 3rd Conference
2026 The Third Hope For Rare Science Conference will be held in Shanghai, China from June 25th to 27th, 2026. The conference is hosted by Hope for Rare Foundation, with National Children's Medical Center / Children's Hospital of Fudan University and Chinese Organization for Rare Disorders （CORD）as co-hosts.
The conference will last for 2.5 days with 22 parallel sessions and several satellite meetings. It will bring together over 100 speakers from global universities, hospitals, academic institutions, and pharmaceutical companies. Topics will cover basic research on rare diseases, gene and cell therapies, clinical studies, drug development, international research collaborations, and research funding in life sciences and medicine. The conference will present the latest developments and original findings in rare diseases research, highlighting China’s contributions in the context of a global perspective.
Host
Hope for Rare Foundation was founded in 2022 by Kevin Huang in partnership with several renowned scientists and entrepreneurs. It is the first nonprofit foundation focusing on scientific research and translational medicine of rare diseases in China. Our vision is to advance the care of ALL patients with rare diseases, and our mission is to become an Innovation Engine for advancing rare diseases research and translational medicine.
Co-hosts
National Children's Medical Center / Children's Hospital of Fudan University, founded in 1952, is a Grade A tertiary Pediatric hospital integrating medicine, teaching, research, prevention and management, and was approved as the National Children's Medical Center in 2017. With strong medical strength and distinctive specialty features, it currently has 50 clinical and medical technical departments. It has established close collaboration with 26 internationally renowned medical institutions and has organized large-scale international academic conferences on pediatrics for many times.
The Chinese Organization for Rare Disorders (CORD), founded by Kevin HUANG in 2013, is a non-profit organization specializing in the fields of rare diseases. CORD works to promote communication and cooperation among rare disease patients and organizations, clinical experts, pharmaceutical companies, and governmental agencies. It is committed to enhancing public understanding of rare diseases, improving access to orphan drugs, advocating for rare disease policies, and initiating international cooperation.
Highlights of the Conference
大会简介
Hope for Rare Science Conference（HRSC ,中国罕见病科研大会）由瑞鸥公益基金会于2022年发起，旨在搭建国内外罕见病科研与转化医学的学术交流与合作平台，重点推动产、学、研、医、患、政等多方合作。
大会每两年举办一届，邀请全球顶尖科学家汇聚中国，全面展示中国的科研实力，开展深入而务实的国际学术交流与合作。大会已经成为在中国举办的最高水准和最大规模的罕见病学术会议之一，力求打造成为全球最具影响力的罕见病学术会议。
在当前复杂的国际环境下，大会扮演重要而特殊的民间推动作用，打破当下的国际合作壁垒，为推动罕见病的科研与转化做出中国贡献。
第三届大会简介
2026年6月25-27日，2026第三届中国罕见病科研大会在中国上海举办。大会由瑞鸥公益基金会主办，国家儿童医学中心复旦大学附属儿科医院、蔻德罕见病中心联合主办。
会议为期两天半，设有22个专场和若干卫星会，将邀请100余位来自海内外高校、医院、科研院所及医药企业从事罕见病基础与转化医学研究的讲者，围绕罕见病基础研究、基因与细胞治疗、临床研究、药物研发、国际科研合作、罕见病科研资助等多个主题进行分享与交流，报告罕见病科研最新进展与原创性成果，展示罕见病研究的中国力量与国际视野。
主办方
瑞鸥公益基金会是国内首家专注于罕见病科学研究与转化医学的创新型公益基金会。基金会由黄如方先生倡议并联合多位知名科学家和企业家共同发起创立。基金会的愿景是让罕见病患者人人享有治疗，通过公益的力量，引领科技向善，成为推动罕见病科研和转化医学的创新引擎。
联合主办方
国家儿童医学中心复旦大学附属儿科医院，创建于1952年，是集医、教、研、防、管为一体的三级甲等儿童专科医院。2017年获批国家儿童医学中心。医疗力量雄厚，专科特色鲜明，目前共设50个临床、医技科室。并与26家国际知名医疗机构建立密切协作关系，多次举办大型儿科国际学术会议。
蔻德罕见病中心(CORD)是一家专注于罕见病领域的非营利性组织，于2013年6月由黄如方先生发起成立。蔻德致力于增进罕见病患者群体、罕见病组织、医学机构、医药企业和政府部门等各相关方的交流与合作，持续为患者社群支持和赋能，加强社会公众对罕见病的了解，提高患者的药物可及性，推动医患交流及科研转化，开展罕见病领域国际交流合作，促进中国罕见病事业发展。
大会特色
